Cancer Update...

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JohnBG
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Cancer Update...

Post by JohnBG » Tue Mar 24, 2015 11:19 am

Hey Guys & Gals,

Sorry to be an absentee landlord, but work, family, and a crapload of medical tests have consumed all my time over the past few weeks.

Over the past few weeks, I've had a lump removed, biopsied, diagnosed with non-Hodgkin's lymphoma, had a PET scan, bone marrow biopsy, forgot how much bloodwork, a port inserted in my chest for chemo, and had my follow-ups visits with doctors. Not to mention trying to work and spend time with family during all of it.

I met with my oncologist yesterday as he had all of the results back. The good news is that my bone marrow biopsy was clear so it's not in my bones. :D My blood work is all normal except my sugar is a little high.

I have been diagnosed stage 3 diffuse large B cell non-Hodgkin's lymphoma. They stage lymphoma different than other cancers, all that means is that I have it above and below my diaphragm. The PET scan showed it mainly in my left shoulder (where I had the lump removed), left thigh, and a little near my spleen. The spleen is a little concerning as that's an organ and my oncologist will monitor that during my treatments and call in a radiation oncologist if needed. But at least it's not super widespread.

More good news is that they really have the treatment for this cancer dialed in and there is an excellent chance they can eradicate it totally.

I start chemotherapy on Friday and will need 6 rounds, each three weeks apart, so it's going to be a little crazy for me until June. The chemo is called R-CHOP which is the abbreviation of all the medications. It's not going to be fun, I'm a little scared, but I am anxious to get started and beat this thing. They have good anti-nausea meds and hopefully I will only be down a few days after each treatment. A good friend of mine that went thru this says it's like having a really bad hangover for 2-3 days each time. At least I can recuperate over the weekend and have my wife with me and not miss too much work (gotta keep paying the bills and need to keep my health benefits). The chemo sessions are 4-6 hours long and I can bring my iPad or laptop with me so I will have some time to check into Soviet Steeds.

QBall has been a great help checking in on me and offering advice as he went through the same thing not too long ago. Thanks QBall!

Only bad news is last week when I took the Ural out for a spin it started sputtering and running like crap on one cylinder. I let the engine cool a and pulled the plug to find the spark plug electrode mashed up against the tip (no gap) which leads me to believe that my rig may have ingested something, perhaps a nut or washer from the air cleaner. I'm not sure when I will feel up to pulling the head and looking inside. Even then, I'm not sure how much riding I am going to feel up to doing, assuming my wife will let me out of her sight.

Thanks to all of you for your continued prayers and support. I had a great time meeting MartyL and Mrs.L last Saturday in Winter Park for lunch as a last hurrah before chemo.
John Grocke aka "JohnBG"
Site Administrator - sovietsteeds.com

Current Rides:
'06 Ural Raven - "Vorona"
'09 Kawasaki KLR650 - "Madea"

History:
'98.5 Ural Tourist - "Valentina" - Gone but not forgotten.
2002 Harley Road King FLHPI
1997 Harley Electra Glide FLHTPI
Honda Nighthawk 650 from the mid-80's
1980 Suzuki RM125T
1970 Honda CL100

Love is the feeling you get when you like something as much as your motorcycle.” ― Hunter S. Thompson

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sagerat
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Re: Cancer Update...

Post by sagerat » Tue Mar 24, 2015 11:34 am

Glad to hear the docs know what to do to get you right.

I'll refrain from bad jokes about it being easier to diagnose you than your Ural. :P

Best of luck John and more good wishes and karma sent your way.
2004 Ural Tourist (2004-2018, 48,000 klicks)

2012 Ural Gobi (Forward to the horizon)

2009 BMW R1200GS Adventure (KIA, sniff)

2017 Kawasaki KLR650 (Semi-orphaned by Urals)

rougaroo
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Re: Cancer Update...

Post by rougaroo » Tue Mar 24, 2015 12:00 pm

Best of luck going through this. They say marijuana is good for the nausea and keeping the appetite up during chemo :wink:

Look forward to you posting a clear prognosis in the future -

Rougaroo
2003 Tourist - lotsa upgrades
2004 Troyka - work in progress

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JohnBG
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Re: Cancer Update...

Post by JohnBG » Tue Mar 24, 2015 12:08 pm

rougaroo wrote:Best of luck going through this. They say marijuana is good for the nausea and keeping the appetite up during chemo :wink:

Look forward to you posting a clear prognosis in the future -

Rougaroo
Oh hell that's all I need, the hippie lettuce... As if I'm not loopy enough already... :lol:
John Grocke aka "JohnBG"
Site Administrator - sovietsteeds.com

Current Rides:
'06 Ural Raven - "Vorona"
'09 Kawasaki KLR650 - "Madea"

History:
'98.5 Ural Tourist - "Valentina" - Gone but not forgotten.
2002 Harley Road King FLHPI
1997 Harley Electra Glide FLHTPI
Honda Nighthawk 650 from the mid-80's
1980 Suzuki RM125T
1970 Honda CL100

Love is the feeling you get when you like something as much as your motorcycle.” ― Hunter S. Thompson

stagewex
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Re: Cancer Update...

Post by stagewex » Tue Mar 24, 2015 12:25 pm

That all sounds like good and encouraging news John... with the exception of the status report on your Ural.
Hang in there.
Stagewex

Current Herd all running amok:
2019 Honda CRF450L (Elec Start)
2008 Vespa 150S (Elec & Kick Start)
2007 Ural Patrol (2WD, Elec & Kick Start)
2006 Honda "Big Ruckus" PS250 (Elec Start)
1991 Honda XR250L (Kick Start Only) *NOT running amok, out for Bottom & Top-End Rebuild.
1986 Yamaha BW200ES (Elec & Kick Start)

List what you "have", keep the others in your precious memory bank.

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Hedwig
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Re: Cancer Update...

Post by Hedwig » Tue Mar 24, 2015 12:35 pm

Hi John,
Good news on the cancer, bad news on the rig. Very important to keep up your strength. Drink plenty, i mean a $#!+ load of water. My wife is a nurse in Oncology @ Yale. She and all her nurse friends are always saying to drink plenty of water.
All the best
David / Hedwig
2012 Retro ( Hedwig )

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QBall
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Re: Cancer Update...

Post by QBall » Tue Mar 24, 2015 12:37 pm

Attitude is every thing. If you feel sorry for your self it just beats you up. Stay Strong and plow through it. No to say its easy but it can be done. Keep in touch.
QBall
2007 Gear Up - Yertle
2000 Triumph TBird

CURD Ambassador to Connecticut

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Peter Pan
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Re: Cancer Update...

Post by Peter Pan » Tue Mar 24, 2015 12:41 pm

Go for it and
I want to live!
I want to live!
I want to live!
On, on.
Sven
Sophie Travelair = Patrol 2013
8 weeks 12.000km Oregon-Alaska-Oregon
With a DIY foam air filter the rig runs well even in tropical rain = :moto:
Final drives: 1. at 5000km, 2. at 34.000km(+friction plates) 3. at 42.386km
transmission: 1. 40.000km. 2. installed
Engine: 1. 43.388km crank replacement: Back on the road since 23.Okt.2019 :party:

The Avatar are 2 rice grains stating life's essence:
"The most important you cannot see!"
=> Attitude makes the difference!

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DaveO
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Re: Cancer Update...

Post by DaveO » Tue Mar 24, 2015 12:56 pm

All the Best to You John, You're in my thoughts :)
'00 CMSI Patrol

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223sniper
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Re: Cancer Update...

Post by 223sniper » Tue Mar 24, 2015 12:57 pm

I agree with QBALL. Attitude makes a huge difference. Serenity can be found in many places. Personally I found mine in Zen. No, you don't have to shave your head or wear colorful robes, but the nurses at the hospital might get a kick out of that. :lol:
An armed society is a polite society.
2011 Gear Up
2007 Wolf

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Darman
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Re: Cancer Update...

Post by Darman » Tue Mar 24, 2015 1:05 pm

thinkin of you and yours in this time of stress and turmoil.
09 NATO green Gear Up
73 ironhead "fatster"
3 horses and a mule ( the mule counts as a sidecar....)

"better to have it and not need it than to need it and not have it", Capt. Woodrow Call

I-man
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Re: Cancer Update...

Post by I-man » Tue Mar 24, 2015 1:14 pm

I'm new here, never had the pleasure of meeting you, but love the site.

reading your description of your treatment reminds me of mine 15 years ago. I hope 15 years from now you look back on it as a distant memory, as I do now.
2013 Ural T

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Red Dwarf
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Re: Cancer Update...

Post by Red Dwarf » Tue Mar 24, 2015 1:20 pm

Thanks for the update, John.

Give your oncologist a big wet kiss for me, will ya? :P
I too have spent some quality [as in expensive] time with them folks.

Get well soon you so you can party hearty[and fix that rig]!. :party:
2012 Retro

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wooden nickel
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Re: Cancer Update...

Post by wooden nickel » Tue Mar 24, 2015 2:38 pm

Hey John,
Good to hear the treatment is dialed in.
I'm no Ural guru but if you need someone to pull the head and take a peek, I can do that. I probably even have a spare head gasket in my stash.
If you want me to come, just name a time. I promise to get the day right this time. :oops:
Hang in there,
Nick
I may not be good, but I'm slow.
Nick
2014 M70 Retros, the sports car of Urals.

Leftka
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Re: Cancer Update...

Post by Leftka » Tue Mar 24, 2015 3:10 pm

my thoughts and prayers are with you John.
Leftka
Naples, FL
2012 "Red October" Tourist, Ursula
128/40 Jets
Harmonized at 10" hg
Dynojet DNO106 Needles, 3rd Notch From Bottom
Leftka 3, ALLuminum Custom Airbox
K & N MG 200 Filter Element
7/64" Drilled Carb Slides
Power Arc Ignition with VOES Advance/Retard
Mod Top Mufflers on Stock Headers
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Left Hand Throttle, Front Brake and Clutch

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